‘It was never about me’: A qualitative inquiry into the experiences of psychological support and perceived support needs of family caregivers of people with high-grade glioma

Family caregivers of people with high-grade glioma often report high rates of psychological distress, which has been attributed to the unique aspects of the disease and onerous care demands. Clinical practice guidelines advocate for caregiver support from diagnosis through to end-of-life and bereavement. Yet, research has identified that caregivers' support needs are often overlooked.