Coping with Inflammatory Bowel Disease

应对(心理学) 定性研究 非概率抽样 医学 疾病 信息需求 心理学 老年学 临床心理学 人口 环境卫生 病理 社会科学 计算机科学 万维网 社会学
作者
Gayle Restall,Alexandria Simms,John R. Walker,Clove Haviva,Lesley A. Graff,Kathryn A. Sexton,Norine Miller,Laura E. Targownik,Çharles N. Bernstein
出处
期刊:Inflammatory Bowel Diseases [Oxford University Press]
卷期号:23 (8): 1247-1256 被引量:7
标识
DOI:10.1097/mib.0000000000001141
摘要

People with inflammatory bowel disease (IBD) require disease and lifestyle information to make health-related decisions in their daily lives. Derived from a larger qualitative study of the lived experiences of people with IBD, we report on findings that explored how people with IBD engage with health-related information in their daily lives. Participants were recruited primarily from the Manitoba IBD Cohort Study. We used purposive sampling to select people with a breadth of characteristics and experiences. Individual interviews were audio-recorded and transcribed verbatim. Data were analyzed using inductive qualitative methods consistent with a phenomenological approach. Forty-five people with IBD participated; 51% were women. Findings highlighted the temporal and contextual influences on engagement with health-related information. Temporal influences were described as the changing need for health-related information over time. Participants identified 6 contextual factors influencing engagement with information to make health decisions: (1) emotional and attitudinal responses, (2) perceived benefits and risks, (3) trust in the source of the information, (4) knowledge and skills to access and use information, (5) availability of evidence to support decisions, and (6) social and economic environments. Findings illustrate the changing needs for health-related information over the course of IBD, and with evolving health and life circumstances. Practitioners can be responsive to information needs of people with IBD by having high-quality information available at the right time in a variety of formats and by supporting the incorporation of information in daily life.

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