已入深夜,您辛苦了!由于当前在线用户较少,发布求助请尽量完整地填写文献信息,科研通机器人24小时在线,伴您度过漫漫科研夜!祝你早点完成任务,早点休息,好梦!

P206 A survey to explore how our rheumatoid patients used the British Society for Rheumatology electronic patient-reported outcome measure platform

医学 痹症科 类风湿性关节炎 心理干预 物理疗法 患者报告的结果 家庭医学 内科学 生活质量(医疗保健) 护理部
作者
Sarah Fish,Jane Brazendale,Carol Greenall,Elizabeth MacPhie
出处
期刊:Rheumatology [Oxford University Press]
卷期号:61 (Supplement_1)
标识
DOI:10.1093/rheumatology/keac133.205
摘要

Abstract Background/Aims Patient-reported outcome measures (PROMs) engage and empower patients, providing a powerful tool in understanding the impact of healthcare interventions. Where PROMs are embedded in clinical practice, trends can be recognised, informing treatment decisions. In August 2020, the British Society for Rheumatology launched its ePROM platform; in March 2021 recruitment of our Rheumatoid arthritis (RA) patients commenced. Six months later, we were keen to explore patient engagement, confidence completing self-reported DAS28 and determine if patients viewed ePROMs as enhancing their care. Methods The ePROMs platform was discussed with patients with stable RA. To date 88 RA patients are registered, each was sent an immediate DAS28 followed by six monthly DAS28’s. In September 2021 a survey was created on SurveyMonkey® and emailed to patients registered. The survey gathered: age, employment status, disease duration and treatment pathway, previous use of apps to record DAS28, utilisation of ePROMs to record DAS28, response times to DAS28 completion requests, engagement with DAS28 patient video before completion of DAS28, time taken to complete DAS28 electronically, confidence assessing own joints, experience of ePROMs influencing patient involvement in own care, benefits of ePROMs for patient, suggestions for improvement. Results The response rate was 23.8% (21), with 42.8% (9) of respondents having completed a DAS28 ePROM. See table of ePROM survey results. The majority of respondents were 65+ years old with 10+ years’ disease duration and unemployed/retired. Under half had completed a self-reported DAS28, of those over 70% had viewed the patient video and over 90% felt confident completing the DAS28, with 90% feeling that ePROMs increased their involvement in care. Patients commented that with ePROMs they feel well connected to the team. One patient reported, ‘Exact answers are given. I feel face to face, l say that I feel fine when I don't’. Conclusion Only 42.8% of our RA patient respondents have engaged with the ePROMs platform and completed a DAS28, of which 90% of patients were confident completing a self-reported DAS28. For respondents who have engaged with ePROMs, their experience has been positive and empowered them to feel involved in their care. Disclosure S.J. Fish: None. J. Brazendale: None. C. Greenall: None. E. MacPhie: Other; EM is the North West Rheumatology Club secretary and meetings have been sponsored by MSD, UCB, Abbvie and Lilly.

科研通智能强力驱动
Strongly Powered by AbleSci AI
科研通是完全免费的文献互助平台,具备全网最快的应助速度,最高的求助完成率。 对每一个文献求助,科研通都将尽心尽力,给求助人一个满意的交代。
实时播报
可爱的函函应助特来骑采纳,获得10
2秒前
2秒前
4秒前
fighting发布了新的文献求助10
6秒前
bamboo发布了新的文献求助10
7秒前
罗婕发布了新的文献求助10
9秒前
怡然的凌兰完成签到,获得积分10
11秒前
阔达静曼完成签到 ,获得积分10
11秒前
小马甲应助adai采纳,获得10
11秒前
科研通AI6.4应助梦or夢采纳,获得10
11秒前
虚幻的捕完成签到 ,获得积分10
18秒前
完美世界应助糖醋猪里脊采纳,获得10
18秒前
坚定铸海完成签到,获得积分10
20秒前
20秒前
xyjf15完成签到,获得积分10
22秒前
搜集达人应助宝儿柯察金采纳,获得10
23秒前
26秒前
踏实乐枫完成签到,获得积分20
26秒前
斯文败类应助水若冰寒采纳,获得10
26秒前
ange发布了新的文献求助10
27秒前
茉莉完成签到 ,获得积分10
29秒前
陈生完成签到,获得积分10
29秒前
30秒前
31秒前
01完成签到 ,获得积分10
31秒前
33秒前
O已w时o完成签到 ,获得积分10
35秒前
36秒前
snow2号完成签到 ,获得积分10
37秒前
39秒前
丰富沛山发布了新的文献求助10
39秒前
时光发布了新的文献求助20
39秒前
水若冰寒发布了新的文献求助10
39秒前
40秒前
SANWilsonT完成签到,获得积分10
41秒前
xiaofeixia完成签到 ,获得积分10
43秒前
大模型应助点凌蝶采纳,获得10
43秒前
44秒前
景三完成签到 ,获得积分10
45秒前
adai发布了新的文献求助10
47秒前
高分求助中
Standards for Molecular Testing for Red Cell, Platelet, and Neutrophil Antigens, 7th edition 1000
HANDBOOK OF CHEMISTRY AND PHYSICS 106th edition 1000
ASPEN Adult Nutrition Support Core Curriculum, Fourth Edition 1000
Signals, Systems, and Signal Processing 610
脑电大模型与情感脑机接口研究--郑伟龙 500
GMP in Practice: Regulatory Expectations for the Pharmaceutical Industry 500
简明药物化学习题答案 500
热门求助领域 (近24小时)
化学 材料科学 医学 生物 纳米技术 工程类 有机化学 化学工程 生物化学 计算机科学 物理 内科学 复合材料 催化作用 物理化学 光电子学 电极 细胞生物学 基因 无机化学
热门帖子
关注 科研通微信公众号,转发送积分 6298733
求助须知:如何正确求助?哪些是违规求助? 8115723
关于积分的说明 16990317
捐赠科研通 5360058
什么是DOI,文献DOI怎么找? 2847564
邀请新用户注册赠送积分活动 1825013
关于科研通互助平台的介绍 1679320