Courageous Conversations: Using Interactive Games to Discuss Goals of Care and Advance Care Planning with Adolescents and Their Families (TH335)

社会心理的 预先护理计划 心理干预 后悔 对话 医疗保健 医学 愉快 护理部 心理学 医学教育 缓和医疗 精神科 心理治疗师 计算机科学 沟通 经济增长 机器学习 经济
作者
Tessie W. October,Lori Wiener
出处
期刊:Journal of Pain and Symptom Management [Elsevier]
卷期号:53 (2): 331-332
标识
DOI:10.1016/j.jpainsymman.2016.12.059
摘要

•Briefly review state-of-the art, evidence-based interventions to support advance care planning for teens in order to promote patient-centered care.•Introduce 3 interactive, play-based tools to facilitate adolescent patients’ participation in goals of care and advance care planning discussions for end-of-life care.•Practice beginning the advance care planning discussion using an advance care planning tool, Voicing My Choices. Including adolescents in advance care planning has been identified by the Institute of Medicine as a standard designed to promote patient-centered care. Unfortunately, adolescents don’t always get a seat at the table. This exclusion often occurs because providers are uncomfortable and unprepared to initiate these important discussions, adolescents frequently want to protect their parents and won’t volunteer to be included, and parents are often afraid to talk about death with their child. We know from our research, and that of other scientists, that adolescents want to engage in these conversations and they can participate. Also, parents report less decisional regret and psychosocial long term outcomes when their child participated in advance care planning decisions. In this workshop we aim to introduce 3 tools designed to engage adolescent patients in the discussion. ShopTalk: a therapeutic game, created to help youth living with cancer talk about their illness in a non-threatening way with a health care provider. Jenga: a game that uses stacked wooden blocks inscribed with thought-provoking questions that encourage discussion about goals of care and advance care planning. My Gift of Grace: a conversation card game. 74% of people who played My Gift of Grace went on to perform an advance care planning activity following the game. We will first introduce each of the tools then invite participants to practice in a small group, rotating through all 3 tools. After the small groups practice each tool, we will report our experiences to the large group as a whole. Finally, participants will be broken into triads (patient/family member/health care provider) to practice through role-play how to introduce advance care planning with patients and their families.
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