肌萎缩侧索硬化
近亲
比例(比率)
心理学
评定量表
家庭成员
全国健康访谈调查
医学
家庭医学
老年学
临床心理学
发展心理学
疾病
环境卫生
病理
人口
考古
物理
历史
量子力学
作者
Anneli Ozanne,Lennart Persson
出处
期刊:Palliative & Supportive Care
[Cambridge University Press]
日期:2012-09-27
卷期号:11 (3): 183-189
被引量:2
标识
DOI:10.1017/s1478951512000089
摘要
Abstract Objective: The aim of this study was to compare self-estimates of the physical, psychological, and general well-being of patients with amyotrophic lateral sclerosis (ALS) and their next of kin with the assessment of the nurses and physician of these participants. Method: The well-being of 35 pairs of patients and their next of kin was rated by themselves, and by a physician and nurses. The well-being was examined over time, using a visual analogue scale (VAS). Patients' physical function was estimated at the same time with the Amyotrophic Lateral Sclerosis Functional Rating Scale-Revised and the Norris scale. Results: The correlations between the staff's estimates of the well-being of patients and next of kin were similar to their own estimates, even though staff to a higher degree estimated a decrease in well-being over time among the patients. The estimates by the nurses correlated better to that of the patients and next of kin in psychological and general well-being than the physicians' estimates did. Significance of results: Even though the staff's estimates of participants were roughly equivalent to their self-estimates, there were some differences. This result calls attention to the importance of working in teams in which different professional roles are combined and integrated, making it possible to form a holistic view of the situation of each family. A concern overlooked by one member of staff might be covered by another, and different focuses on the family may give a better composite picture of their life situation, which could lead to better support to the family.
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