皮肌炎
皮肤病科
医学
生活质量(医疗保健)
答辩人
护理部
政治学
法学
作者
Joshua Dan,Grant Sprow,Josef Concha,Jay Patel,Nilesh Kodali,DeAnna Diaz,Thomas Vazquez,Victoria P. Werth
摘要
Recently, more emphasis has been placed on patient-reported outcomes in clinical trials, which has inadvertently led to an increase in respondent burden. In this study, we found that the Skindex-16 form captures patient-reported quality of life in dermatomyositis as well as the Skindex-29 form but with fewer questions. Additional questions regarding photosensitivity, body image and cosmetic use did not correlate with skin activity in dermatomyositis.
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