Impact of a decision aid for drivers living with dementia: A parallel-group quasi-experimental study

Not all drivers living with dementia need to cease driving upon diagnosis. However, early planning for driving retirement is recommended. To guide and support decisions and early planning for driving retirement, there is a need for person-centered resources. This study aimed to test the effects of a dementia and driving decision aid for drivers living with dementia. The primary outcome measured was decisional conflict. Secondary outcome measures were dementia knowledge, decision, satisfaction with decision, booklet use, and booklet acceptability. A parallel-group quasi-experimental study was conducted in Australia and New Zealand. Twenty drivers living with dementia were recruited from the community. Participants self-nominated after responding to media articles promoting the study and were allocated into an intervention or comparison group by the research assistant. The intervention group reviewed the dementia and driving decision aid booklet. Telephone interviews were conducted over three data collection time points at: baseline, 1 week, and 3 months. The intervention and comparison groups each comprised ten participants. Decisional conflict, knowledge, and satisfaction with decision significantly improved in the intervention group following use of the decision aid, however the differences were not significantly greater than the control group. Booklet acceptability levels were high. The dementia and driving decision aid is an acceptable, person-centered intervention enabling individuals living with dementia to be central to decisions about driving retirement. The findings are relevant for primary care in Australia and New Zealand and applicable to the growing number of drivers living with dementia in car-dependent societies.