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50 积分 2023-03-13 加入
Group intervention programs and their impact on well-being and quality-of-life for adults living with a rare or orphan disease – realist review of literature
1年前
已完结
Knowledge, Cultural, and Structural Barriers to Thalassemia Screening in Migrant Populations in Thailand
1年前
已关闭
Abstract P4-18-05: Male breast cancer— infusing a little blue into the sea of pink
1年前
已关闭
"If not me, who?": Awareness- and Self-Advocacy-Related Experiences of Adults With Diverse Rare Disorders
1年前
已完结
Genetic diagnosis for rare diseases in the Dutch Caribbean: a qualitative study on the experiences and associated needs of parents
1年前
已完结
EE65 Aspects Affecting Quality of Life in Patients with Rare Disease and Their Carers: Are Current Utility Instrument Capturing Enough?
1年前
已关闭
(53) Psychosis in Progressive Multifocal Leukoencephalopathy: Management and Social Underpinnings
1年前
已关闭
Enacted Stigma Experiences and Identity Noticeability of LGBQ+ Women with Rare Diseases
1年前
已完结
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