The perceptions and experience of developing patient (version of) guidelines: a descriptive qualitative study with Chinese guideline developers

护理研究 健康信息学 医学 卫生行政 指南 定性研究 公共卫生 护理部 家庭医学 卫生服务研究 医学教育 病理 社会科学 社会学
作者
Yan Li-jiao,Jiale Hu,Ze-Yu Yu,Shelly‐Anne Li,Karen Graham,Sarah Scott,Chen Shen,Xuejing Jin,Jianping Liu
出处
期刊:BMC Health Services Research [Springer Nature]
卷期号:23 (1) 被引量:3
标识
DOI:10.1186/s12913-023-09591-5
摘要

Abstract Objective To understand developers’ perception of patient (versions of) guidelines (PVGs), and identify challenges during the PVG development, with the aim to inform methodological guidance for future PVG development. Methods We used a descriptive qualitative design. Semi-structured interviews were conducted virtually from December 2021 to April 2022, with a purposive sampling of 12 PVG developers from nine teams in China. Conventional and directed content analysis was used for data analysis. Results The interviews identified PVG developers’ understanding of PVGs, their current practice experience, and the challenges of developing PVGs. Participants believed PVGs were a type of health education material for patients; therefore, it should be based on patient needs and be understandable and accessible. Participants suggested that PVGs could be translated/adapted from one or several clinical practice guidelines (CPG), or developed de novo (i.e., the creation of an entirely new PVG with its own set of research questions that are independent of existing CPGs). Participants perceived those existing methodological guidelines for PVG development might not provide clear instructions for PVGs developed from multiple CPGs and from de novo development. Challenges to PVG development include (1) a lack of standardized and native guidance on developing PVGs; (2) a lack of standardized guidance on patient engagement; (3) other challenges: no publicly known and trusted platform that could disseminate PVGs; concerns about the conflicting interests with health professionals. Conclusions and practice implications Our study suggests clarifying the concept of PVG is the primary task to develop PVGs and carry out related research. There is a need to make PVG developers realize the roles of PVGs, especially in helping decision-making, to maximize the effect of PVG. It is necessary to develop native consensus-based guidance considering developers’ perspectives regarding PVGs.
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