Measuring coping in people with amyotrophic lateral sclerosis using the Coping Index-ALS: A patient derived, Rasch compliant scale

肌萎缩侧索硬化 应对(心理学) 心理学 拉什模型 临床心理学 心理干预 原始分数 医学 疾病 精神科 发展心理学 统计 内科学 原始数据 数学
作者
Carolyn Young,Christopher McDermott,Timothy L. Williams,J. Ealing,Tahir Majeed,Ammar Al‐Chalabi,D J Dick,Kevin Talbot,Timothy Harrower,Ashwin Pinto,C. Oliver Hanemann,Georgina Burke,Rhys Roberts,R. J. Mills,Alan Tennant
出处
期刊:Journal of the Neurological Sciences [Elsevier BV]
卷期号:421: 117285-117285
标识
DOI:10.1016/j.jns.2020.117285
摘要

Abstract Objective The progressively disabling and terminal nature of ALS/MND imposes major coping demands on patients. We wished to improve the psychometric properties of our previously published MND-Coping Scale, so that parametric analyses were valid, and to make it simpler for patients to complete and clinicians to score. Methods After a new qualitative analysis of 26 patients with ALS/MND, the draft Coping Index-ALS (CI-ALS) was administered to 465 additional patients, alongside COPE-60, General Perceived Self Efficacy scale, and WHOQOL-BREF. Validity of the CI-ALS was assessed using the Rasch model. External validity was checked against comparator measures. Results Thirteen centres contributed 465 patients, mean age 64.9 years (SD 10.8), mean disease duration 28.4 months (SD 37.5). The CI-ALS-Self and CI-ALS-Others both satisfied Rasch model expectations and showed invariance across age, gender, marital status and type of onset. Expected correlations were observed with comparator scales. A nomogram is available to convert the raw scores to interval level measures suitable for parametric analysis. Conclusions Coping abilities in ALS/MND can now be measured using a simple 21 item self-report measure, offering two subscales with a focus of ‘coping by self ’ and ‘coping with others’. This allows clinicians to identify individuals with poor coping and facilitates research on interventions that may improve coping skills.
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