肌萎缩侧索硬化
应对(心理学)
心理学
拉什模型
临床心理学
比例(比率)
差异项目功能
克朗巴赫阿尔法
结构效度
评定量表
医学
心理测量学
生活质量(医疗保健)
相关性
作者
Carolyn A Young,Christopher J McDermott,Tim Williams,John Ealing,Tahir Majeed,Ammar Al-Chalabi,David Dick,Kevin Talbot,Timothy Harrower,Ashwin Pinto,Clemens Oliver Hanemann,G Burke,Roland G. Roberts,R J Mills,Alan Tennant
标识
DOI:10.1016/j.jns.2020.117285
摘要
Abstract Objective The progressively disabling and terminal nature of ALS/MND imposes major coping demands on patients. We wished to improve the psychometric properties of our previously published MND-Coping Scale, so that parametric analyses were valid, and to make it simpler for patients to complete and clinicians to score. Methods After a new qualitative analysis of 26 patients with ALS/MND, the draft Coping Index-ALS (CI-ALS) was administered to 465 additional patients, alongside COPE-60, General Perceived Self Efficacy scale, and WHOQOL-BREF. Validity of the CI-ALS was assessed using the Rasch model. External validity was checked against comparator measures. Results Thirteen centres contributed 465 patients, mean age 64.9 years (SD 10.8), mean disease duration 28.4 months (SD 37.5). The CI-ALS-Self and CI-ALS-Others both satisfied Rasch model expectations and showed invariance across age, gender, marital status and type of onset. Expected correlations were observed with comparator scales. A nomogram is available to convert the raw scores to interval level measures suitable for parametric analysis. Conclusions Coping abilities in ALS/MND can now be measured using a simple 21 item self-report measure, offering two subscales with a focus of ‘coping by self ’ and ‘coping with others’. This allows clinicians to identify individuals with poor coping and facilitates research on interventions that may improve coping skills.
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