Quality of Life in Families with Children with Atopic Dermatitis

斯科拉德 医学 特应性皮炎 皮肤科生活质量指数 瘙痒的 生活质量(医疗保健) 疾病严重程度 门诊部 湿疹面积及严重程度指数 疾病 儿科 皮肤病科 临床心理学 精神科 内科学 护理部
作者
Nives Pustišek,Maja Živković,Mirna Šitum
出处
期刊:Pediatric Dermatology [Wiley]
卷期号:33 (1): 28-32 被引量:45
标识
DOI:10.1111/pde.12698
摘要

Atopic dermatitis (AD) is a common childhood disease of increasing prevalence that not only changes the life of the affected children, but also affects the social and emotional functioning of their families.The aim of our study was to assess the quality of life (QOL) of parents with children with AD and its predictors.One hundred seventy-one parents of children with AD attending the outpatient Pediatric Dermatology Unit, Children's Hospital Zagreb, participated in the study. The severity of AD was estimated using the Scoring Atopic Dermatitis (SCORAD) index. Parents were asked to complete the Croatian version of the Family Dermatology Life Quality Index (FDLQI), the Patient-Oriented (PO) SCORAD, the Perceived Stress Scale (PSS), and a general questionnaire during a regular follow-up visit.Family QOL is significantly correlated with the SCORAD score (correlation coefficient [r] = 0.578), PO SCORAD (r = 0.447), itching (r = 0.528), sleeplessness (r = 0.583), and PSS (r = 0.464). When these factors were entered into a regression analysis, they predicted as much as 67% of the variance of QOL (FDLQI), with significant predictors being PO SCORAD, PO sleeplessness, and PSS, and they remained significant even after controlling for a number of general and medical factors.The severity of illness as perceived by dermatologists and parents is similar, and itching, sleeplessness, and perceived stress are strong QOL predictors of parents caring for children with AD.
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