Longitudinal effect of dementia carers' sense of coherence on burden

Abstract Background A sense of coherence (SOC) could help us better understand why there are individuals who cope better than others in similar situations. The study aimed to assess the effect of SOC on the course of burden reports in relatives of persons with dementia. Methods This was a prospective cohort study of 156 dementia carers. The SOC was assessed by the Orientation to Life Questionnaire (OLQ‐13), burden by Burden Interview, and personal and contextual characteristics were collected via ad hoc questions. The main dementia symptoms, including functional difficulties (Disability Assessment for Dementia), neuropsychiatric symptoms (Neuropsychiatric Inventory), and cognitive impairment (Mini‐Mental State Examination), were also assessed. A general linear model was adjusted to determine the effect of SOC and other covariates on burden throughout the follow‐up. Burden differences between baseline and 12 and 24 months were analysed, and the baseline OLQ‐13 score was grouped by quartiles. Results The global burden reported increased after 24 months ( F = 9.98; df = 2; p < 0.001), but not equally for all carers; daughters reported the greatest increase. SOC, functional disability, and neuropsychiatric disorders showed a significant effect on burden, but time did not. Carers with higher SOC at baseline tend to remain with lower burden levels, whereas carers with low SOC reported higher burden at each visit. Conclusions This study reports evidence of the effect of SOC on burden at baseline, 12 and 24 months of follow‐up. Burden scores differ by carers' SOC; those with higher SOC showed lower burden levels, whereas the low‐SOC group reported a greater burden at each visit.