感觉
医学
卫生专业人员
互联网
家庭医学
疾病
信息搜寻
医疗保健
心理学
社会心理学
病理
万维网
计算机科学
图书馆学
经济
经济增长
作者
Adriano Chiò,Anna Montuschi,Stefania Cammarosano,Stefania De Mercanti,Enrico Cavallo,Antonio Ilardi,Paolo Ghiglione,Roberto Mutani,Andrea Calvo
标识
DOI:10.1111/j.1468-1331.2007.02000.x
摘要
To evaluate information preferences and information seeking behaviour in ALS patients and caregivers. Sixty ALS patients and caregivers couples were interviewed using a structured questionnaire about the content of diagnosis communication and their information seeking behaviour. The patients (35 men and 25 women) had a mean age of 63.4 years (SD 9.5). The caregivers (21 men and 39 women) had a mean age of 53.3 years (SD 14.9). The overall satisfaction with bad news communication and the impression that the physician had understood their feelings were higher amongst patients. Both parties indicated that the most important aspects to be informed were current researches, disease-modifying therapies and ALS outcome. Approximately 55% of patients and 83.3% of caregivers searched for information from sources outside the healthcare system. The most frequently checked source was internet, although its reliability was rated low. The caring neurologist should better attune the content of communication to patients' and caregivers' preferences, trying to understand what they want to know and encouraging them to make precise questions. Health professionals should be aware that ALS patients and caregivers often use internet to obtain information and should help them to better sort-out and interpret the news they found.
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