社会心理的
肌萎缩侧索硬化
心理学
生命历程法
背景(考古学)
医疗保健
扎根理论
定性研究
透视图(图形)
老年学
医学
护理部
疾病
发展心理学
精神科
社会学
病理
生物
古生物学
人工智能
经济
经济增长
计算机科学
社会科学
作者
Geraldine Foley,Virpi Timonen,Orla Hardiman
标识
DOI:10.1177/1049732313516545
摘要
Researchers have explored perceptions of health care services among people with amyotrophic lateral sclerosis (ALS), but little is known about how and why people with ALS engage with services. We undertook a grounded theory study to identify key psychosocial processes that underpin how and why people with ALS engage with health care services. We conducted in-depth interviews with 34 participants sampled from the Irish ALS population-based register. We found that age and life stage shaped participants’ decision making about care. Participants in later life were more accepting of ALS and of death than young and middle-aged participants. Family was the primary context to how participants engaged with services, and their decisions about care were shaped by parenthood at different life stages. Health care professionals need to be attuned to the impact of life-course trajectories and family relations on the decisions people with ALS make about their care.
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